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Introduction
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Disease impact
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Rare Disease Care Plan Information Session
110 years of education and training in rare disease care programs
Rare Disease Care Program Diversified Activities
Activities of Taiwan Multiple Sclerosis Association North District Patient Association
111-year supervision theme education training and case seminar
2022/08/02Education training and aromatherapy stress relief
Add Line for Rare Disease Care
Satisfaction Survey
Rare Disease Care Handbook
Activities
2022
Niu Dau-Ming: Whole-gene sequencing can effectively prevent cancer and sudden death
Pompe disease treatment leads the world
Ministry of Health and Welfare Quarterly - Issue 33 2022.06
2021
"Fabry Disease Research and Treatment Center" won the SNQ Quality Mark Gold Award
Niu, Dau-Ming won the 31st Medical Dedication Award
Niu, Dau-Ming won the Medical Dedication Award, a clip of the press conference
Niu, Dau-Ming, winner of the Medical Service Award, clip of the award ceremony
The Hope of Rare Disease Patients
2020
2020 New Advances in Pediatric Medicine of the Chinese Medical Association
Good season Farm makes bamboo rice and pizza by itself
2019
108 year-end medical education and parent-child activities for patients
Williams Syndrome Association parent-child activities for patients
Director Niu Dau-Ming Fabry Disease domestic and foreign conferences
Hong Kong Pompe Disease Association visit
2018
Director Niu Dau-Ming Chinese Medical Association Fabry Disease domestic and foreign conferences
Director Dau-Ming Niu's 107 years of fruitful research results on Fabry Disease
Director Niu Dau-Ming's 2017 "Pompe Disease Medical Lecture"
Newborn’s blood looks like ‘strawberry milkshake’ Triglycerides rise to 20,000 and nearly fatal
2017
Director Dau-Ming Niu was invited to give lectures on Fabry disease in Japan
Director Niu, Dau-Ming participated in domestic and foreign medical conferences and shared records
(Reproduced from) TVBS report Niu, Dau-Ming director Fabry's disease - equipment donation ceremony
2016
Director Niu, Dau-Ming Fabry Disease Domestic and foreign conferences International exchanges
Reprinted from United Daily News - Niu, Dau-Ming, Newborn genetic testing actually saved this mother
2015
Director Dau-Ming Niu Fabry disease Symposium
Director Niu, Dau-Ming Taiwan-Japan Fabry disease Symposium
2014
Director Niu, Dau-Ming went to Fukuoka, Japan to share the Taiwan Fabry Disease experence
Niu, Dau-Ming attended International Conference on Fabry Disease
International Exchange Dr. Max J. Hilz from Germany visited and delivered a speech
2013
Director Dau-Ming Niu to International Conference on Fabry Syndrome in Spain
Director Dau-Ming Niu to Asia-Pacific Lysosome International Conference in Japan
Director Dau-Ming Niu gave a keynote speech at the Tokyo International Conference
Director Dau-Ming Niu Hosts International Symposium on Fabry Syndrome
Director Dau-Ming Niu Fabry's disease health education lecture
2012
Director Dau-Ming Niu Early detection of Fabry's disease blood test
Undertake the "Taiwan Fabry's Disease Clinical Trial Alliance" project
OPD consultation
Pompe disease consultation process
Hypothyroidism consultation process
Fabry's disease consultation process
G6PD favism consultation process
Growth Curve Calculator
Disease info
Growth hormone stimulation test(Clonidine)
Horizontal gaze palsy with progressive scoliosis (HGPPS)
Sex hormone test and sex hormone medication hospitalization common questions and answers
Short-chain acyl-coenzyme A dehydrogenase deficiency; SCAD
Tyrosinemia type II
Glutaric acidemia type I fever and diarrhea emergency treatment
Citrullinemia type II
Hypothyroidism medication dose education sheet
Glycogen Storage Disease Type 1A
Precocious puberty health education sheet
Fabry Disease
Primary carnitine deficiency syndrome
Homocystinuria
Adrenoleukodystrophy
Kabuki Syndrome
Russell-Silver Syndrome
Pompe Disease
Overweight oral steroid suppression test outpatient common questions and answers
Logistics Center for Rare Disease Drugs and Food
Free Foods and Drugs for Rare Diseases application regulations
Foods for Rare Diseases
Calogen
Phlexy-Vits
PK AID 4
I-Valex-2
Glutarex-2
Lorenzo's oil
BCAD
Phenyl Free 1
Alfaré
GA1 Anamix
PFD
Essential Amino Acid
Phenyl free 2
HCU Anamix
GENERAID plus
IVA Anamix
Cyclinex-1
Cyclinex-2
Tyrex-1
Tyrex-2
Hominex-2
Pregestimil
I-Valex-1
Glutarex-1
Hominex-1
MMA/PA Anamix
Medication for Rare Diseases
Arginine HCL Injection
BH4
Proglycem
Sodium Benzoate
Sucraid
Normosang
Rare disease safe food
Laboratory
實驗室簡介
Download
Search
Search
Introduction
Origin
Purpose
Organization
Service items
Genetic Disease Consultation Clinic
Development status
Future development
Newborn screening
Diagnosis statistics over the years
Rare Disease Care
Introduction to Rare Disease Care
Disease impact
Psychological support
Pregnancy care
Nursing consultation
Activities
Rare Disease Care Plan Information Session
110 years of education and training in rare disease care programs
Rare Disease Care Program Diversified Activities
Activities of Taiwan Multiple Sclerosis Association North District Patient Association
111-year supervision theme education training and case seminar
2022/08/02Education training and aromatherapy stress relief
Add Line for Rare Disease Care
Satisfaction Survey
Rare Disease Care Handbook
Activities
2022
Niu Dau-Ming: Whole-gene sequencing can effectively prevent cancer and sudden death
Pompe disease treatment leads the world
Ministry of Health and Welfare Quarterly - Issue 33 2022.06
2021
"Fabry Disease Research and Treatment Center" won the SNQ Quality Mark Gold Award
Niu, Dau-Ming won the 31st Medical Dedication Award
Niu, Dau-Ming won the Medical Dedication Award, a clip of the press conference
Niu, Dau-Ming, winner of the Medical Service Award, clip of the award ceremony
The Hope of Rare Disease Patients
2020
2020 New Advances in Pediatric Medicine of the Chinese Medical Association
Good season Farm makes bamboo rice and pizza by itself
2019
108 year-end medical education and parent-child activities for patients
Williams Syndrome Association parent-child activities for patients
Director Niu Dau-Ming Fabry Disease domestic and foreign conferences
Hong Kong Pompe Disease Association visit
2018
Director Niu Dau-Ming Chinese Medical Association Fabry Disease domestic and foreign conferences
Director Dau-Ming Niu's 107 years of fruitful research results on Fabry Disease
Director Niu Dau-Ming's 2017 "Pompe Disease Medical Lecture"
Newborn’s blood looks like ‘strawberry milkshake’ Triglycerides rise to 20,000 and nearly fatal
2017
Director Dau-Ming Niu was invited to give lectures on Fabry disease in Japan
Director Niu, Dau-Ming participated in domestic and foreign medical conferences and shared records
(Reproduced from) TVBS report Niu, Dau-Ming director Fabry's disease - equipment donation ceremony
2016
Director Niu, Dau-Ming Fabry Disease Domestic and foreign conferences International exchanges
Reprinted from United Daily News - Niu, Dau-Ming, Newborn genetic testing actually saved this mother
2015
Director Dau-Ming Niu Fabry disease Symposium
Director Niu, Dau-Ming Taiwan-Japan Fabry disease Symposium
2014
Director Niu, Dau-Ming went to Fukuoka, Japan to share the Taiwan Fabry Disease experence
Niu, Dau-Ming attended International Conference on Fabry Disease
International Exchange Dr. Max J. Hilz from Germany visited and delivered a speech
2013
Director Dau-Ming Niu to International Conference on Fabry Syndrome in Spain
Director Dau-Ming Niu to Asia-Pacific Lysosome International Conference in Japan
Director Dau-Ming Niu gave a keynote speech at the Tokyo International Conference
Director Dau-Ming Niu Hosts International Symposium on Fabry Syndrome
Director Dau-Ming Niu Fabry's disease health education lecture
2012
Director Dau-Ming Niu Early detection of Fabry's disease blood test
Undertake the "Taiwan Fabry's Disease Clinical Trial Alliance" project
OPD consultation
Pompe disease consultation process
Hypothyroidism consultation process
Fabry's disease consultation process
G6PD favism consultation process
Growth Curve Calculator
Disease info
Growth hormone stimulation test(Clonidine)
Horizontal gaze palsy with progressive scoliosis (HGPPS)
Sex hormone test and sex hormone medication hospitalization common questions and answers
Short-chain acyl-coenzyme A dehydrogenase deficiency; SCAD
Tyrosinemia type II
Glutaric acidemia type I fever and diarrhea emergency treatment
Citrullinemia type II
Hypothyroidism medication dose education sheet
Glycogen Storage Disease Type 1A
Precocious puberty health education sheet
Fabry Disease
Primary carnitine deficiency syndrome
Homocystinuria
Adrenoleukodystrophy
Kabuki Syndrome
Russell-Silver Syndrome
Pompe Disease
Overweight oral steroid suppression test outpatient common questions and answers
Logistics Center for Rare Disease Drugs and Food
Free Foods and Drugs for Rare Diseases application regulations
Foods for Rare Diseases
Calogen
Phlexy-Vits
PK AID 4
I-Valex-2
Glutarex-2
Lorenzo's oil
BCAD
Phenyl Free 1
Alfaré
GA1 Anamix
PFD
Essential Amino Acid
Phenyl free 2
HCU Anamix
GENERAID plus
IVA Anamix
Cyclinex-1
Cyclinex-2
Tyrex-1
Tyrex-2
Hominex-2
Pregestimil
I-Valex-1
Glutarex-1
Hominex-1
MMA/PA Anamix
Medication for Rare Diseases
Arginine HCL Injection
BH4
Proglycem
Sodium Benzoate
Sucraid
Normosang
Rare disease safe food
Laboratory
實驗室簡介
Download
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:::
陳信宏 (Hsin-Hung Chen)
Return Appointment
First Appointment
[Profile]
Education
Department of Medicine, National Yang-Ming University,
Career and Experience
Experiences:
- , Attending Physician of Neurosurgery, Taipei Veterans General Hospital,
Medical Expertise
Children head trauma surgery Children epilepsy surgery Child brain tumor surgery Spinal tumor surgery Spinal cord membranes Peng out of surgery to repair spina bifida Take care of children with neurological intensive care
Children head trauma surgery;Children epilepsy surgery;Child brain tumor surgery;Spinal tumor surgery;Spinal cord membranes Peng out of surgery to repair spina bifida;Take care of children with neurological intensive care
License
License of Surgical specialist License of Neurosurgery specialist License of Neural spine surgery specialist License of Critical care medicine specialist
License of Surgical specialist@$License of Neurosurgery specialist@$License of Neural spine surgery specialist@$License of Critical care medicine specialist
Language Expertise
Mandarin Taiwanese English
[Publications]
Chen HH
, Chang FC, Wong TT. Scoliosis and syringomyelia with Chiari malformation after lumbar shunting. J Chin Med Assoc 2010 Jul; 73 (7): 384-8.
Yen SH
,
Chen YW
,
Huang PI
,
Wong TT
,
Ho DM
,
Chang KP
,
Liang ML
,
Chiou SH
,
Lee YY
,
Chen HH
. Optimal Treatment for Intracranial Germinoma: Can We Lower Radiation Dose Without Chemotherapy?Int J RadiatOncolBiol Phys.2010 Jul 15;77(4):980-7.
Wong TT,
Chen HH
, Liang ML, Yen YS, Chang FC. Neuroendoscopy in the management of pineal tumors. Childs Nerv Syst. 2011 Jun;27(6):949-59.
Chen HH
, Riva-Cambrin J, Brockmeyer DL, Walker ML, Kestle JR. Shunt failure due to intracranial migration of BioGlide ventricular catheters. J NeurosurgPediatr. 2011 Apr;7(4):408-12.
Wong TT, Liang ML,
Chen HH,
Chang FC. Hydrocephalus with brain tumor in children. Childs Nerv Syst. 2011 Oct;27(10):1723-34.
Wang JC, Wong TT,
Chen HH
, Chang PY, Yang TF. Bilateral sciatic neuropathy as a complication of craniotomy performed in the sitting position: localization of nerve injury by using magnetic resonance imaging. Childs Nerv Syst. 2011 Sep; 28:159-163.
Chen YW, Huang PI, Ho DM, Hu YW, Chang KP, Chiou SH, Guo WY, Chang FC, Liang ML, Lee YY,
Chen HH
, Hsu TR, Lin SC, Wong TT, Yen SH. Change in treatment strategy for intracranial germinoma: long-term follow-up experience at a single institute. Cancer. 2011 Oct 11.
Liu CA, Chen HC, Luo CB, Guo WY, Mu-HuoTeng M,
Chen HH
, Chang CY. Dural sinus malformation with arteriovenous fistulae in a newborn: positive outcome following endovascular management. J Chin Med Assoc. 2012 Jan; 75(1):43-6.
Lee CC, Lin CF, Yan TF, Hsu SP,
Chen HH
, Chen SC, Shih YH. Telovelar approach for choroid plexus papilloma in the foramen of Luschka: a safe way using a neuromonitor. ClinNeurolNeurosurg. 2011 Dec 30.
Hu YW, Huang PI, Wong TT, Ho DM, Chang KP, Guo WY, Chang FC, Shiau CY, Liang ML, Lee YY,
Chen HH
, Yen SH, Chen YW. Salvage treatment for recurrent intracranial germinoma after reduced-volume radiotherapy: a single-institution experience and review of the literature. Int J RadiatOncolBiol Phys. 2012 Nov; 84 (3):639-47
Lin CF,
Chen HH
, Hernesniemi J, Lee CC, Liao CH, Chen SC, Chen MH, Shih YH, Hsu SP. An easy adjustable method of ectaticvertebrobasilar artery transposition for microvascular decompression. ClinNeurolNeurosurg. 2012 Sep; 114(7):951-6
Lee CC, Wang WH, Lin CF,
Chen HH
, Chen SC, Lin SC, Hung SC, Guo WY, Ho DM, Shih YH, Hsu SP. Malignant transformation of supratentorialganglioglioma. ClinNeurolNeurosurg. 2012 Dec; 114(10):1338-42
Hung YC, Chang FC, Chen YW, Liang ML,
Chen HH*
, Hsu SP, Yang HC, Wong TT. Langerhans’ cell histiocytosis in the pediatric spine: therapeutic dynamic change of spinal deformity. Childs Nerv Syst. 2012 Aug; 28(8): 1243-50
(corresponding author)
Hsu SP, Krisht AF, Lin CF,
Chen HH
, Chen MH, Shih YH, Hsu HS. Immediate results of microsurgical clipping of posterior communicating artery aneurysms using the pretemporaltrasclinoidal approach. J Chin Med Assoc. 2012 Sep; 75(9): 454-8
Liao CH, Chang FC, Hsu SP, Hung YC,
Chen HH*
, Liang ML, Wong TT, Shih YH. Spinal subdural hematoma following posterior fossa surgery. Formosan Journal of Surgery. 2013 Apr; 46(2): 52-5
(corresponding author)
Chen SC, Lin DS, Lee CC, Hung SC, Chen YW, Hsu SP, Lin CF, Wong TT, Chen MH,
Chen HH*
. Rhabdoidglioblastoma: a recently recognized subtype of glioblastoma. ActaNeurochir (Wien). 2013 Jun 29.
(corresponding author)
Chen HH
, Chang FC, Chen YW, et al. Basal ganglia germ cell tumors: report of 43 cases (in submission)
Chen HH
, Chang FC, Chen YW, et al. Bilateral basal ganglia germ cell tumors: clinical diagnosis, treatment, and outcome in 9 cases (in submission)
Chiang CC, Lin SC, Wu HM, Wang JC, Yang TF,
Chen HH
, Ho DM, Wong TT. Clinical manifestation and neurosurgical intervention of encephalocraniocutaneouslipomatosis-a case report and review of literature. Childs Nerv Syst. 2013 Aug 24.
(corresponding author)
Wang JC, Lai CJ, Wong TT, Liang ML,
Chen HH
, Chan RC, Yang TF. Health-related quality of life in children and adolescents with spinal dysraphism: results from a Taiwanese sample. Childs Nerv Syst. 2013 Sep; 29(9): 1671-9.
Liang SY, Yang TF, Chen YW, Liang ML,
Chen HH
, Chang KP, Shan IK, Chen YS, Wong TT. Neuropsychological functions and quality of life in survived patients with intracranial germ cell tumors after treatment. Neuro-Oncology. 2013 Jul.
Yang TF,
Chen HH
, Liang ML, Chen C, Chiu JW, Wang JC, Lai CJ, Liao KK, Chan RC. Intraoperative brain mapping to identify corticospinal projections during resective epilepsy surgery in children with congenital hemiparesis. Childs Nerv Syst. 2014 Sep; 30(9): 1559-64.
Chen HH
, Chen C, Hung SC, Liang SY, Lin SC, Hsu TR, Yeh TC, Yu HY, Lin CF, Hsu SP, Liang ML, Yang TF, Chu LS, Lin YY, Chang KP, Kwan SY, Ho DM, Wong TT, Shih YH. Cognitive and epilepsy outcomes after epilepsy surgery caused by focal cortical
dysplasia in children: early intervention maybe better. Childs Nerv Syst. 2014
Nov;30(11):1885-95.
Wang WH, Hung YC, Hsu SP, Lin CF,
Chen HH
, Shih YH, Lee CC. Endoscopic hematoma evacuation in patients with spontaneous supratentorialintracerebral hemorrhage. J Chin Med. 2014 Nov 29.