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Introduction
Origin
Purpose
Organization
Service items
Genetic Disease Consultation Clinic
Development status
Future development
Newborn screening
Diagnosis statistics over the years
Rare Disease Care
Introduction to Rare Disease Care
Disease impact
Psychological support
Pregnancy care
Nursing consultation
Activities
Rare Disease Care Plan Information Session
110 years of education and training in rare disease care programs
Rare Disease Care Program Diversified Activities
Activities of Taiwan Multiple Sclerosis Association North District Patient Association
111-year supervision theme education training and case seminar
2022/08/02Education training and aromatherapy stress relief
Add Line for Rare Disease Care
Satisfaction Survey
Rare Disease Care Handbook
Activities
2022
Niu Dau-Ming: Whole-gene sequencing can effectively prevent cancer and sudden death
Pompe disease treatment leads the world
Ministry of Health and Welfare Quarterly - Issue 33 2022.06
2021
"Fabry Disease Research and Treatment Center" won the SNQ Quality Mark Gold Award
Niu, Dau-Ming won the 31st Medical Dedication Award
Niu, Dau-Ming won the Medical Dedication Award, a clip of the press conference
Niu, Dau-Ming, winner of the Medical Service Award, clip of the award ceremony
The Hope of Rare Disease Patients
2020
2020 New Advances in Pediatric Medicine of the Chinese Medical Association
Good season Farm makes bamboo rice and pizza by itself
2019
108 year-end medical education and parent-child activities for patients
Williams Syndrome Association parent-child activities for patients
Director Niu Dau-Ming Fabry Disease domestic and foreign conferences
Hong Kong Pompe Disease Association visit
2018
Director Niu Dau-Ming Chinese Medical Association Fabry Disease domestic and foreign conferences
Director Dau-Ming Niu's 107 years of fruitful research results on Fabry Disease
Director Niu Dau-Ming's 2017 "Pompe Disease Medical Lecture"
Newborn’s blood looks like ‘strawberry milkshake’ Triglycerides rise to 20,000 and nearly fatal
2017
Director Dau-Ming Niu was invited to give lectures on Fabry disease in Japan
Director Niu, Dau-Ming participated in domestic and foreign medical conferences and shared records
(Reproduced from) TVBS report Niu, Dau-Ming director Fabry's disease - equipment donation ceremony
2016
Director Niu, Dau-Ming Fabry Disease Domestic and foreign conferences International exchanges
Reprinted from United Daily News - Niu, Dau-Ming, Newborn genetic testing actually saved this mother
2015
Director Dau-Ming Niu Fabry disease Symposium
Director Niu, Dau-Ming Taiwan-Japan Fabry disease Symposium
2014
Director Niu, Dau-Ming went to Fukuoka, Japan to share the Taiwan Fabry Disease experence
Niu, Dau-Ming attended International Conference on Fabry Disease
International Exchange Dr. Max J. Hilz from Germany visited and delivered a speech
2013
Director Dau-Ming Niu to International Conference on Fabry Syndrome in Spain
Director Dau-Ming Niu to Asia-Pacific Lysosome International Conference in Japan
Director Dau-Ming Niu gave a keynote speech at the Tokyo International Conference
Director Dau-Ming Niu Hosts International Symposium on Fabry Syndrome
Director Dau-Ming Niu Fabry's disease health education lecture
2012
Director Dau-Ming Niu Early detection of Fabry's disease blood test
Undertake the "Taiwan Fabry's Disease Clinical Trial Alliance" project
OPD consultation
Pompe disease consultation process
Hypothyroidism consultation process
Fabry's disease consultation process
G6PD favism consultation process
Growth Curve Calculator
Disease info
Growth hormone stimulation test(Clonidine)
Horizontal gaze palsy with progressive scoliosis (HGPPS)
Sex hormone test and sex hormone medication hospitalization common questions and answers
Short-chain acyl-coenzyme A dehydrogenase deficiency; SCAD
Tyrosinemia type II
Glutaric acidemia type I fever and diarrhea emergency treatment
Citrullinemia type II
Hypothyroidism medication dose education sheet
Glycogen Storage Disease Type 1A
Precocious puberty health education sheet
Fabry Disease
Primary carnitine deficiency syndrome
Homocystinuria
Adrenoleukodystrophy
Kabuki Syndrome
Russell-Silver Syndrome
Pompe Disease
Overweight oral steroid suppression test outpatient common questions and answers
Logistics Center for Rare Disease Drugs and Food
Free Foods and Drugs for Rare Diseases application regulations
Foods for Rare Diseases
Calogen
Phlexy-Vits
PK AID 4
I-Valex-2
Glutarex-2
Lorenzo's oil
BCAD
Phenyl Free 1
Alfaré
GA1 Anamix
PFD
Essential Amino Acid
Phenyl free 2
HCU Anamix
GENERAID plus
IVA Anamix
Cyclinex-1
Cyclinex-2
Tyrex-1
Tyrex-2
Hominex-2
Pregestimil
I-Valex-1
Glutarex-1
Hominex-1
MMA/PA Anamix
Medication for Rare Diseases
Arginine HCL Injection
BH4
Proglycem
Sodium Benzoate
Sucraid
Normosang
Rare disease safe food
Laboratory
實驗室簡介
Download
Search
Search
Introduction
Origin
Purpose
Organization
Service items
Genetic Disease Consultation Clinic
Development status
Future development
Newborn screening
Diagnosis statistics over the years
Rare Disease Care
Introduction to Rare Disease Care
Disease impact
Psychological support
Pregnancy care
Nursing consultation
Activities
Rare Disease Care Plan Information Session
110 years of education and training in rare disease care programs
Rare Disease Care Program Diversified Activities
Activities of Taiwan Multiple Sclerosis Association North District Patient Association
111-year supervision theme education training and case seminar
2022/08/02Education training and aromatherapy stress relief
Add Line for Rare Disease Care
Satisfaction Survey
Rare Disease Care Handbook
Activities
2022
Niu Dau-Ming: Whole-gene sequencing can effectively prevent cancer and sudden death
Pompe disease treatment leads the world
Ministry of Health and Welfare Quarterly - Issue 33 2022.06
2021
"Fabry Disease Research and Treatment Center" won the SNQ Quality Mark Gold Award
Niu, Dau-Ming won the 31st Medical Dedication Award
Niu, Dau-Ming won the Medical Dedication Award, a clip of the press conference
Niu, Dau-Ming, winner of the Medical Service Award, clip of the award ceremony
The Hope of Rare Disease Patients
2020
2020 New Advances in Pediatric Medicine of the Chinese Medical Association
Good season Farm makes bamboo rice and pizza by itself
2019
108 year-end medical education and parent-child activities for patients
Williams Syndrome Association parent-child activities for patients
Director Niu Dau-Ming Fabry Disease domestic and foreign conferences
Hong Kong Pompe Disease Association visit
2018
Director Niu Dau-Ming Chinese Medical Association Fabry Disease domestic and foreign conferences
Director Dau-Ming Niu's 107 years of fruitful research results on Fabry Disease
Director Niu Dau-Ming's 2017 "Pompe Disease Medical Lecture"
Newborn’s blood looks like ‘strawberry milkshake’ Triglycerides rise to 20,000 and nearly fatal
2017
Director Dau-Ming Niu was invited to give lectures on Fabry disease in Japan
Director Niu, Dau-Ming participated in domestic and foreign medical conferences and shared records
(Reproduced from) TVBS report Niu, Dau-Ming director Fabry's disease - equipment donation ceremony
2016
Director Niu, Dau-Ming Fabry Disease Domestic and foreign conferences International exchanges
Reprinted from United Daily News - Niu, Dau-Ming, Newborn genetic testing actually saved this mother
2015
Director Dau-Ming Niu Fabry disease Symposium
Director Niu, Dau-Ming Taiwan-Japan Fabry disease Symposium
2014
Director Niu, Dau-Ming went to Fukuoka, Japan to share the Taiwan Fabry Disease experence
Niu, Dau-Ming attended International Conference on Fabry Disease
International Exchange Dr. Max J. Hilz from Germany visited and delivered a speech
2013
Director Dau-Ming Niu to International Conference on Fabry Syndrome in Spain
Director Dau-Ming Niu to Asia-Pacific Lysosome International Conference in Japan
Director Dau-Ming Niu gave a keynote speech at the Tokyo International Conference
Director Dau-Ming Niu Hosts International Symposium on Fabry Syndrome
Director Dau-Ming Niu Fabry's disease health education lecture
2012
Director Dau-Ming Niu Early detection of Fabry's disease blood test
Undertake the "Taiwan Fabry's Disease Clinical Trial Alliance" project
OPD consultation
Pompe disease consultation process
Hypothyroidism consultation process
Fabry's disease consultation process
G6PD favism consultation process
Growth Curve Calculator
Disease info
Growth hormone stimulation test(Clonidine)
Horizontal gaze palsy with progressive scoliosis (HGPPS)
Sex hormone test and sex hormone medication hospitalization common questions and answers
Short-chain acyl-coenzyme A dehydrogenase deficiency; SCAD
Tyrosinemia type II
Glutaric acidemia type I fever and diarrhea emergency treatment
Citrullinemia type II
Hypothyroidism medication dose education sheet
Glycogen Storage Disease Type 1A
Precocious puberty health education sheet
Fabry Disease
Primary carnitine deficiency syndrome
Homocystinuria
Adrenoleukodystrophy
Kabuki Syndrome
Russell-Silver Syndrome
Pompe Disease
Overweight oral steroid suppression test outpatient common questions and answers
Logistics Center for Rare Disease Drugs and Food
Free Foods and Drugs for Rare Diseases application regulations
Foods for Rare Diseases
Calogen
Phlexy-Vits
PK AID 4
I-Valex-2
Glutarex-2
Lorenzo's oil
BCAD
Phenyl Free 1
Alfaré
GA1 Anamix
PFD
Essential Amino Acid
Phenyl free 2
HCU Anamix
GENERAID plus
IVA Anamix
Cyclinex-1
Cyclinex-2
Tyrex-1
Tyrex-2
Hominex-2
Pregestimil
I-Valex-1
Glutarex-1
Hominex-1
MMA/PA Anamix
Medication for Rare Diseases
Arginine HCL Injection
BH4
Proglycem
Sodium Benzoate
Sucraid
Normosang
Rare disease safe food
Laboratory
實驗室簡介
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:::
王署君 (Shuu-Jiun Wang)
複診掛號
初診掛號
[Profile]
Education
美國賓州費城天普大學附設頭痛中心進修 (1996)
國立陽明大學醫學系畢業 (1988)
Career and Experience
Current Positions:
- 迄今 臺北榮民總醫院 副院長
- 迄今 國立陽明交通大學 醫學院院長
- 迄今 國立陽明交通大學腦科學研究中心主任
- 迄今 國立陽明交通大學醫學系講座教授
Experiences:
- 台北榮民總醫院神經醫學中心中心主任
- 國立陽明交通大學醫學院副院長
Medical Expertise
頭痛
失智症
疼痛
不寧腿
三叉神經痛
[Publications]
主要研究:
1. 偏頭痛的臨床與流行病學研究
2. 可逆性血管收縮症候群
3. 低腦壓頭痛
獲獎
:
2024 入選史丹佛大學公布之「World’s Top 2% Scientists全球前2%頂尖科學家榜單」
2024 Research.com網站公布之「台灣最佳神經科學科學家」第1名
2023 第33屆王民寧獎「國內醫藥研究成果對醫藥科技發展、國民健康、國家社會及產業發展傑出貢獻獎」- 臨床醫學類
2023 教育部第67屆學術獎
2023 第26屆國家生技醫療品質獎【特色醫療組銀獎】:臺北榮總頭痛醫學團隊/滴水不漏-自發性顱內低壓全球領先的抓漏專家
2022 厚生基金會第32屆台灣醫療奉獻獎
2022 第19屆國家新創獎臨床創新獎-以腦波技術實現偏頭痛的精準治療
2021 科技部未來獎
2018 科技部 (國科會) 傑出研究獎 (第二次)
2016 歐洲頭痛學會 G. Nappi 叢發性頭痛獎
2014 第17屆國家生技醫療品質獎【特色醫療組銅獎】:臺北榮總頭痛醫學團隊/迎頭痛擊 頭痛醫學領航者
2012 國科會傑出研究獎。(第一次)
2010 美國頭痛學會 Seymour Solomon Presidential Lecture 獎
1994 美國神經學學會Schoenberg國際神經流行病學獎
代表論文
(* correspondent)
Chen SP, Chang YH, Wang YF, Chen HY*,
Wang SJ
*. Composite microRNA-genetic risk score model links to migraine and implicates its pathogenesis. Brain 2025 Jan 18:awaf005. Online ahead of print
Wang SJ
*, Kim BK, Wang H, Zhou J, Wan Q, Yu T, Lian Y, Arkuszewski M, Ecochard L, Snellman J, Wen S, Yin F, Li Z, Su W, Yu S. Effect of erenumab on the reversion from chronic migraine to episodic migraine in Asian population: Post hoc analysis of the DRAGON study. Headache 2025;65(1):143-52.
Wu CH, Chang FC, Wang YF, Lirng JF, Wu HM, Pan LLH,
Wang SJ
*, Chen SP*. Impaired glymphatic and meningeal lymphatic functions in patients with chronic migraine. Ann Neurol 2024;95(3):583-95.
Niddam DM, Lai KL, Hsiao YT, Wang YF,
Wang SJ*
. Grey matter structure within the visual networks in migraine with aura: multi- and uni-variate analyses. Cephalalgia 2024;44(1):3331024231222637.
Hsiao FJ*, Chen WT, Wu YT, Pan LLH, Wang YF, Chen SP, Lai KL, Coppola G,
Wang SJ
*
.
Characteristic oscillatory brain networks for predicting patients with chronic migraine. J Headache Pain 2023;24:139.
Lange KS*, Choi SY*, Ling YH, Chen SP, Mawet J, Duflos C, Lee MJ, Ducros A,
Wang SJ
*, Pezzini A; on Behalf of the REVERCE Network. Reversible cerebral Vasoconstriction syndrome intERnational CollaborativE (REVERCE) network: Study protocol and rationale of a multicentre research collaboration. Eur Stroke J 2023;8(4):1107-13.
Wu CH, Kuo Y, Chang FC, Lirng JF, Ling YH, Wang YF, Wu HM, Fuh JL, Lin CJ,
Wang SJ
*, Chen SP*. Noninvasive investigations of human glymphatic dynamics in a diseased model. Eur Radiol 2023;33(12):9087-98.
Niddam DM, Wu JW, Lai KL, Yang YY, Wang YF,
Wang SJ
*. An altered reward system characterizes chronic migraine with medication overuse headache. Cephalalgia 2023;43(4):3331024231158088.
Wu JW, Chen ST, Wang YF, Lai KL, Chen TY, Chen SP, Chen WT,
Wang SJ
*. Sphenopalatine Ganglion Volumetry in Episodic Cluster Headache: From Symptom Laterality to Cranial Autonomic Symptoms. J Headache Pain 2023;24:2.
Yu SY*, Kim BK, Wang HB, Zhou JY, Wan Q, Yu TM, Lian YJ, Arkuszewski M, Ecochard L, Wen SH, Yin FF, Li Z, Su W,
Wang SJ*
. A phase 3, randomised, placebo-controlled study of erenumab for the prevention of chronic migraine in patients from Asia: The DRAGON study. J Headache Pain 2022;23:146.
Chen SP, Hsu CL, Wang YF, Yang FC, Chen TH, Huang JH, Pan LLH, Fuh JL, Chang HC, Lee YL, Chang HC, Lee KH, Chang YC, Fann CSJ*,
Wang SJ*
. Genome-wide analyses identify novel risk loci for cluster headache in Han Chinese residing in Taiwan. J Headache Pain 2022;23:147.
Yang CP, Liang CS, Chang CM, Yang CC, Shih PH, Yau YC, Tang KT*,
Wang SJ*
. Comparison of new pharmacologic agents to triptans for migraine treatment: A systemic review and meta-analysis. JAMA Network Open 2021;4(10):e2128544.
Ashina S, Mitsikostas D, Lee MJ, Yamani N,
Wang SJ
, Messina R, Ashina H, Buse D, Pozo-Rosich P, Jensen R, Diener HC, Lipton R. Tension-type headache. Nat Rev Dis Primers 2021;
7
:24.
Wu CH, Lirng JF, Ling YH, Wang YF, Wu HM, Fuh JL, Lin PC,
Wang SJ*,
Chen SP*. Noninvasive characterization of human glymphatics and meningeal lymphatics in an in vivo model of blood-brain barrier leakage. Ann Neurol 2021;89(1):111-24.
Chen SP, Chang YA, Chou CH, Juan CC, Lee HC, Chen LK, Wu PC, Wang YF, Fuh JL, Lirng JF, Ducros A, Huang HD*,
Wang SJ*
. Circulating microRNAs associated with Reversible Cerebral Vasoconstriction Syndrome. Annals of Neurology 2021;89(3):459-73.
Chen SP*, Fuh JL, Chou KH, Huang YH, Huang CC, Lirng JF, Wang YF, Lin CP,
Wang SJ*
. Dynamic changes in white matter hyperintensities in reversible cerebral vasoconstriction syndrome. JAMA Neurol 2018;75(9):1106-13.
May A, Schwedt TJ, Magis D, Pozo-Rosich P, Evers S, Wang SJ. Cluster Headache. Nature Reviews Disease Primers 2018;4:18006.
Niddam DM*, Lai KL, Tsai SY, Lin YR, Chen WT, Fuh JL,
Wang SJ*
. Neurochemical changes in the medial wall of the brain in chronic migraine. Brain 2018;41:377-90.
Wang YF, Chen YT, Luo JC, Chen TJ, Wu JC,
Wang SJ*
. Proton pump inhibitors are associated with an increased risk of first-time ischemic stroke in the general population: a nationwide population based study. Am J Gastroenterology 2017;112:1084-93.
Wu JW, Hseu SS, Fuh JL, Lirng JF, Wang YF, Chen WT, Chen SP,
Wang SJ*
. Factors predicting response to the first epidural blood patch in spontaneous intracranial hypotension. Brain 2017;140(2):344-52.
Liu HY, Fuh JL, Lin YY, Chen WT*,
Wang SJ*
. Suicide risk in patients with migraine and comorbid fibromyalgia. Neurology 2015;85(12):1017-23.
Chen SP, Fuh JL, Wang YF,
Wang SJ*
. Recurrence of reversible cerebral vasoconstriction syndrome: a long-term follow-up study. Neurology 2015;84(15):1552-8.
Wang YF, Fuh JL, Lirng JF, Chen SP, Hseu SS, Wu JC,
Wang SJ*
. Cerebrospinal fluid leakage and headache after lumbar puncture: a prospective non-invasive imaging study. Brain 2015;138(6):1492-8.
Yang FC, Chou KH, Fuh JL, Lee PL, Lirng JF, Lin YY, Lin CP*,
Wang SJ*
. Altered hypothalamic functional connectivity in cluster headache: a longitudinal resting-state functional MRI study. J Neurol Neurosurg Psychiatry 2015;86:437-45.
Peng KP, Fuh JL,
Wang SJ*
. High-pressure headaches: idiopathic intracranial hypertension and its mimics. Nature Rev Neurol 2012;8:700-10.
書籍:
Modern Day Management of Headache: Questions and Answers. K Ravishankar, Randolph Warren Evans,
Shuu-Jiun Wang
(ed). Jaypee Brothers, Medical Publishers Pvt. Limited, 2017 (ISBN: 9789386056276)
王署君總策畫/臺北榮陽頭痛醫學團隊合著「頭痛看過來:神經內科權威醫師群的精準處方[暢銷修訂版]」(2019, 264頁,原水文化)https://www.books.com.tw/products/0010831022?sloc=main
影音:
大愛電視台「人文講堂」,講題:頭痛,怎麼辦?
https://www.youtube.com/watch?v=3Rg3nV2NpBU
, 2017
臺北榮總臉書,講題:頭痛止痛藥10問專家解答。
https://www.facebook.com/vghtpe
, 2021